An alliance of individuals and organizations working together to prevent Jewish Genetic Diseases through education, awareness and screening

JGDC Members

JGDC member

Bloom’s Syndrome Foundation

Canavan Foundation

Familial Dysautonomia NOW Foundation (FDNOW)

Genetic Disease Foundation

Mathew Forbes Romer Foundation

Mucolipidosis IV (ML4) Foundation

National Tay-Sachs & Allied Diseases Association

Sephardic Health Organization for Referral and Education (SHORE)

Usher 1F Collaborative

JGDC Leadership

Executive Committee

Co-Chairs
Orren Alperstein – Canavan Foundation
Marion Yanovsky – National Tay-Sachs & Allied Diseases Association

Treasurer
Marion Yanovsky

Secretary
Paula Greenberg Kutner – ML4 Foundation

 

Board Members

Gidon Akler, MD – Sephardic Health Organization for Referral and Education (SHORE)

Melissa Chaikof – Usher 1F Collaborative

Richard Gladstein – Bloom Syndrome Foundation

Kevin Romer – Mathew Forbes Romer Foundation

Elisa Ross – Genetic Disease Foundation

Ann Slaw – Familial Dysautonomia NOW Foundation

 

Honorary Board Member

Lois Neufeld – JGDC Founder

 

Medical Advisors

Chair
Judith Wilner, MD

Debra-Lynn Day-Salvatore, MD, PhD

Lawrence R. Shapiro, MD

 

Rabbinic Advisor
Rabbi Peter E. Kasdan

 

Project Coordinator
Shari Ungerleider

 

In Memorium

Frances Berkwits, MS, LMSW – Genetic Counselor

Randi Yudenfriend GlaserBoard Chair

John Barranger, MD – Medical Advisor

David L. Rimoin, MD, PhD – Medical Advisor

Stan Michelman – JGDC Founder and Board Chair

 

JGDC Supporters

the marcus foundation

 Genzyme