JGDC Supporters

the marcus foundation

 Genzyme

 

JGDC Members

JGDC member

Bloom’s Syndrome Foundation
(323) 933-4670

Canavan Foundation
(877) 4-CANAVAN or (212) 873-4640

Familial Dysautonomia NOW Foundation (FDNOW)
(847) 913-0455

Genetic Disease Foundation
(212) 659-6704

Mathew Forbes Romer Foundation
(561) 477-0337

ML4 Foundation
(718) 434-5067

National Gaucher Foundation
(800) 925-8885

National Tay-Sachs & Allied Diseases Association
(617) 277-4463 or (800) 906-8723

Sephardic Health Organization for Referral and Education (SHORE)

JGDC Leadership

Co-Founders

Stan Michelman (deceased), Co-Chair Emeritus

Lois Neufeld, past Chair of the Board

Executive Committee

Chair: Randy Yudenfriend-Glaser, past President – Mucolipidosis IV Foundation

Secretary: Orren Alperstein, President – Canavan Foundation

Treasurer: Marion Yanovsky, National Tay-Sachs & Allied Diseases Association (NTSAD) – Genetic Disease Foundation

Board Members

Rhonda Buyers, Co-Executive Director – National Gaucher Foundation

Richard Gladstein, Founder & President – Bloom’s Syndrome Foundation, Founder & President – FilmColony

Paula Greenberg Kutner, Secretary ML IV Foundation

John Hakimi–Sephardic Health Organization for Referral and Education (SHORE)

Lois Neufeld, Co-Founder and former Co-Chair JGDC, past Vice President Canavan Foundation

Kevin Romer, President – Mathew Forbes Romer Foundation, Inc., Vice President National Tay-Sachs & Allied Diseases Association (NTSAD)

Elisa Ross, President & Member of the Executive Board – Genetic Disease Foundation

Ann Slaw, President, Familial Dysautonomia NOW Foundation

Medical Advisory Committee Chair

Judith Wilner, MD, Honorary Lecturer, Mount Sinai Icahn School of Medicine, Department of Genetics and Genomic Sciences, Associate Professor of Genetic and Genomic Medicine (Retired), Mount Sinai Icahn School of Medicine

Medical Advisors

John Barranger, MD., Director of the Department of Human Genetics University of Pittsburg. Pittsburg, PA

David L. Rimoin, MD, PhD, Director of the Medical Genetics Institute Steven Spielberg Family Chair Cedars-Sinai Medical Center and Professor of Pediatrics, Medicine, and Human Genetics, Program Director of the Intercampus Medical Genetics Training Program David Geffen School of Medicine at UCLA.Los Angeles, CA (deceased 5/27/12, click for article)

Debra-Lynn Day-Salvatore, MD, PhD, FAAP, FACMG, Director, Institute for Genetic Medicine Saint Peter’s University Hospital. New Brunswick, NJ

Lawrence R. Shapiro, MD, FACMG, FAAP, Director Emeritus, Regional Medical Genetics Center, Maria Fareri Children’s Hospital of Westchester Medical Center. Professor of Pediatrics, New York Medical College, NY

Randi E. Zinberg, MS, CGC, Assistant Professor, Genetics and Genomic Sciences. Assistant Professor, Obstetrics, Gynecology and Reproductive Science Director, Master of Science Program in Genetic Counseling Mount Sinai School of Medicine, New York, NY

Rabbinic Advisor
Rabbi Peter E. Kasdan, Rabbi Emeritus – Temple Emanu-El of West Essex, NJ

Genetic Counselor
Frances Berkwits, MS, LMSW, Board Member & Genetic Counselor – National Tay-Sachs & Allied Diseases Association (NTSAD) (deceased 6/29/14)

Project Coordinator
Shari Ungerleider, President, National Tay-Sachs & Allied Diseases Association, Co-Founder – Evan Lee Ungerleider Foundation