JGDC member

Jewish Genetic Disease Consortium Members

Bloom’s Syndrome Foundation
(323) 933-4670 www.bloomssyndrome.org

Canavan Foundation
(877) 4-CANAVAN or (212) 873-4640 www.canavanfoundation.org

Canavan Research Foundation
(203) 746-2436 www.canavan.org

Genetic Disease Foundation
(212) 659-6704 www.GeneticDiseaseFoundation.org

Jacob’s Cure
(914) 673-2796 www.jacobscure.org

The Children’s Fund for Glycogen Storage Disease Research
(203)-272-CURE (2873) www.curegsd.org

National Gaucher Foundation
(800) 925-8885 www.gaucherdisease.org

ML4 Foundation
(718) 434-5067 www.ML4.org

Mathew Forbes Romer Foundation
(561) 477-0337 www.mfrfoundation.org

National Tay-Sachs & Allied Diseases Association New York Area, Inc.
(212) 431-0431 or (888) 354-7788 www.ntsad-ny.org

Sephardic Health Organization for Referral and Education (SHORE)
http://shoreforlife.org/index.html

Jewish Genetic Disease Consortium Leadership

Co-Founders

Stan Michelman (deceased), Co-Chair of the Board, Emeritus

Lois Neufeld

Board and Executive Committee

Chair of the Board:
Randy Yudenfriend-Glaser, past President – Mucolipidosis IV Foundation

Co-Chair of the Board:
Richard Gladstein, Founder & President – Bloom’s Syndrome Foundation, Founder & President – FilmColony

Secretary:
Lois Neufeld, Co-Founder and former Co-Chair – Jewish Genetic Disease Consortium, Vice President – Canavan Foundation

Treasurer:
Marion Yanovsky, Co-President – National Tay-Sachs & Allied Diseases Association (NY), Board Member – Genetic Disease Foundation

Rhonda Buyers, Co-Executive Director – National Gaucher Foundation

David Feldman, President – The Children’s Fund for Glycogen Storage Disease Research

John Hakimi–Sephardic Health Organization for Referral and Education (SHORE)

Jordana Holovach, President – Jacob’s Cure (Canavan Disease)

Kevin Romer, President – Mathew Forbes Romer Foundation, Inc., Vice President – National Tay-Sachs & Allied Diseases Association (NTSAD)

Elisa Ross, President & Member of the Executive Board – Genetic Disease Foundation

Medical Advisory Committee

John Barranger, MD., Director of the Department of Human Genetics University of Pittsburg. Pittsburg, PA

David L. Rimoin, MD, PhD, Director of the Medical Genetics Institute Steven Spielberg Family Chair Cedars-Sinai Medical Center and Professor of Pediatrics, Medicine, and Human Genetics, Program Director of the Intercampus Medical Genetics Training ProgramDavid Geffen School of Medicine at UCLA.Los Angeles, CA (deceased 5/27/12, click for article)

Debra-Lynn Day-Salvatore, MD, PhD, FAAP, FACMG, Director, Institute for Genetic Medicine Saint Peter’s University Hospital. New Brunswick, NJ

Lawrence R. Shapiro, MD, FACMG, FAAP, Director Emeritus, Regional Medical Genetics Center, Maria Fareri Children’s Hospital of Westchester Medical Center. Professor of Pediatrics, New York Medical College, NY

Judith Wilner, MD Mount Sinai School of Medicine

Randi E. Zinberg, MS, CGC, Assistant Professor, Genetics and Genomic Sciences. Assistant Professor, Obstetrics, Gynecology and Reproductive Science Director, Master of Science Program in Genetic Counseling Mount Sinai School of Medicine, New York, NY

Rabbinic Advisor
Rabbi Peter E. Kasdan, Rabbi Emeritus – Temple Emanu-El of West Essex, NJ

Genetic Counselor
Frances Berkwits, MS, LMSW, Board Member & Genetic Counselor – National Tay-Sachs & Allied Diseases Association (NTSAD)

Project Coordinator
Shari Ungerleider, Co-President – National Tay-Sachs & Allied Diseases Association (NY), Co-Founder – Evan Lee Ungerleider Foundation