About

About the JGDC

The Jewish Genetic Disease Consortium (JGDC) increases awareness about Jewish genetic diseases and encourages timely and appropriate carrier screening for all persons who have any Jewish ancestry, as well as couples of mixed heritage. The JGDC is an alliance of non-profit organizations sharing the common goal of combating genetic diseases. While each JGDC member organization has its own individual mission, the JGDC unites these organizations to jointly strengthen public education and awareness about appropriate carrier screening.

JGDC Programs

Through “JGDC In Your Community”, the JGDC offers a three-pronged approach to educate communities about carrier screening for genetic diseases. Through its “Medical Grand Rounds Program”, “Couples Aware Program”, and “Community Program”, the JGDC educates physicians, rabbis, and the lay community about Jewish genetic diseases. The shared goal of these JGDC programs is to decrease the incidence of Jewish genetic diseases and assure healthy families by increasing preconception carrier screening rates and promoting the understanding of reproductive options available to carrier couples.

Please click here to learn more about “JGDC In Your Community.” If you are interested in bringing these programs to your community, please contact the JGDC by email at info@JewishGeneticDiseases.org or phone at 855-642-6900.

JGDC Leadership

Executive Committee

Co-Chairs
Orren AlpersteinCanavan Foundation
Marion YanovskyNational Tay-Sachs & Allied Diseases Association

Treasurer
Marion Yanovsky

Secretary
Paula Greenberg KutnerML4 Foundation

Board Members

Melissa ChaikofUsher 1F Collaborative
Richard GladsteinBloom Syndrome Foundation
Kevin RomerMathew Forbes Romer Foundation
Elisa RossGenetic Disease Foundation
Ann SlawFamilial Dysautonomia NOW Foundation

Honorary Board Member

Lois NeufeldJGDC Founder

Medical Advisors

Judith Wilner, MD – Chair 
Debra-Lynn Day-Salvatore, MD, PhD
Randi Zinberg, MS, CGC

Rabbinic Advisor

Rabbi Peter E. Kasdan

Project Coordinator

Shari Ungerleider

In Memorium

John Barranger, MD – Medical Advisor
Frances Berkwits, MS, LMSWGenetic Counselor
Randi Yudenfriend GlaserBoard Chair
Stan Michelman – JGDC Founder and Board Chair
David L. Rimoin, MD, PhD – Medical Advisor
Lawrence R. Shapiro, MD – Medical Advisor

JGDC Supporters