About the JGDC
The Jewish Genetic Disease Consortium (JGDC) increases awareness about genetic diseases and encourages timely and appropriate carrier screening for all individuals planning to start or add to their family. Founded in 2005, the JGDC is an alliance of non-profit organizations sharing the common goal of combating genetic diseases. While each JGDC member organization has its own individual mission, the JGDC unites these organizations to jointly strengthen public education and awareness about appropriate carrier screening. Initially, the JGDC focused its efforts on the Jewish community, where screening for many diseases was recommended. However, since genetic science rapidly evolved and screening recommendations changed, the JGDC is now committed to educating everyone about carrier screening for genetic diseases.
JGDC Programs
Through “JGDC In Your Community”, the JGDC offers a three-pronged approach to educate communities about carrier screening for genetic diseases. Through its “Medical Grand Rounds Program”, “Couples Aware Program”, and “Community Program”, the JGDC educates physicians, clergy, and the lay community about genetic diseases. The shared goal of these JGDC programs is to decrease the incidence of genetic diseases and assure healthy families by increasing preconception carrier screening rates and promoting the understanding of reproductive options available to carrier couples.
Please click here to learn more about “JGDC In Your Community.” If you are interested in bringing these programs to your community, please contact the JGDC by email at info@JewishGeneticDiseases.org or phone at 855-642-6900.
JGDC Leadership
Board of Directors
Co-Chairs
Orren Alperstein – Canavan Foundation
Marion Yanovsky – National Tay-Sachs & Allied Diseases Association
Treasurer
Marion Yanovsky
Secretary
Paula Greenberg Kutner
Board Members at Large
Melissa Chaikof – Usher 1F Collaborative
Geoffrey Gee – Neuromuscular Disease Foundation
Kevin Romer – Mathew Forbes Romer Foundation
Elisa Ross – Genetic Disease Foundation
Ann Slaw – Familial Dysautonomia NOW Foundation
Project Coordinator
Shari Ungerleider
Medical Advisors
Judith Wilner, MD – Chair
Debra-Lynn Day-Salvatore, MD, PhD
Randi Zinberg, MS, CGC
Rabbinic Advisor
Rabbi Peter E. Kasdan
In Memorium
John Barranger, MD – Medical Advisor
Frances Berkwits, MS, LMSW – Genetic Counselor
Randi Yudenfriend Glaser – Board Chair
Stanley Michelman – JGDC Founder and Board Chair
Lois Neufeld – JGDC Founder and Board Chair
David L. Rimoin, MD, PhD – Medical Advisor
Lawrence R. Shapiro, MD – Medical Advisor
JGDC Supporters
Disclaimer
I. Usage
The use of this Web site is subject to the express condition that users agree to be bound by the terms and conditions set forth in this Usage Agreement. Your use of this Web site constitutes your acceptance of all of the following terms and conditions. Jewish Genetic Disease Consortium (JGDC) reserves the right to change or modify these terms and conditions at any time without notice to you by posting a new version of this Usage Agreement at this Web site.
The text, graphic depictions, artwork and code (the “information”) published on this Web site are the property of JGDC, unless designated otherwise. JGDC assumes no responsibility for errors or omissions in the information on this Web site. In no event shall JGDC be liable for any special, direct, indirect, consequential, or incidental damages or any damages whatsoever resulting from loss of use, data or profits, whether in an action of contract, negligence or other tortious action, arising out of or in connection with the use of this Web site or the information. JGDC reserves the right to make additions, deletions, or modifications to the information on the Web site at any time without prior notice.
Except as provided in this paragraph, no license or right, express or implied, is granted to any person under any copyright, trademark, trade dress or other proprietary right. JGDC grants a limited right to use the information provided that the information is not modified in any way and is used for informational and non-commercial personal use, and provided that JGDC’s copyright notice appears on any copies.
Medical Disclaimer
Information on this Web site is to be used for educational and informational purposes only. Medical information on this Web site, if any, does not represent advice regarding medical diagnosis or treatment, referrals to health care professionals, endorsements of health care products or any other recommendations. Any medical information on this Web site should not be relied upon as a substitute for consultation with your doctor or other qualified health care professionals.
JGDC is not affiliated with any laboratory, medical facility, medical practitioner or testing center. We provide information for informational purposes only. JGDC has not evaluated, nor do we recommend individual laboratories, testing centers or medical facilities or practitioners and therefore, cannot take responsibility for the administration or interpretation of any medical procedures.
Disclaimer of Warranty
Information on this Web site is provided “AS IS” without warranty of any kind, either express or implied, including, but not limited to, the implied warranties of merchantability, fitness for a particular purpose, or non-infringement.
Limitation of Liability
The JGDC will not be liable for any damages or injury that accompany or result from your use of the Web site, including, without limitation, damages or injury caused by any use of or inability to use the Web site, use of or inability to use any site to which you link from the Web site, any error, omission, defect, delay, computer virus, line failure, interruption, or any failure of performance. You agree that you will hold JGDC and its officers, employees, directors, volunteers and agents from all claims arising out of or related to your use or misuse of the Web site or any other web site that is linked to the Web site.
Links from this Web site to non-JGDC web sites does not constitute an endorsement or referral of the non-JGDC sites. JGDC makes no representations or claims as to information or materials provided by such non-JGDC web sites, and specifically disclaims any warranties, either express or implied, including but not limited to the implied warranties of merchantability, fitness for any particular purpose or non-infringement.
II. Privacy
The JGDC provides this privacy statement as part of our firm commitment to protect your privacy. The following discloses our information gathering and dissemination practices for the JGDC Web site.
The Jewish Genetic Disease Consortium gathers information about users: data that users provide through optional, voluntary submission; and aggregated tracking information derived mainly by tallying page views throughout our site. Such information better enables us to tailor our content to readers’ needs.
JGDC uses information voluntarily given by you in the manner explicitly stated at the point where that data is collected. We use this information to fulfill requests that you have made to us, in order to serve your stated needs and interests. JGDC never shares information or mailing lists with any other organization or business of any kind.
We use tracking information to determine which areas of our site users visit. We do not track what individual users read, but rather how well each page performs overall. This helps us continue to build a better service for you.
In terms of aggregated tracking information, JGDC gathers information in the following way: Usage Tracking: JGDC tracks user traffic patterns throughout the site. However, we do not correlate this information with data about individual users. JGDC does break down overall usage statistics by domain name, browser type, and MIME type, by reading this information from the browser string (information contained in every user’s browser).
JGDC creates aggregate reports on user demographics and traffic patterns for prospective sponsors and advertisers.
This site contains links to other sites. JGDC is not responsible for the privacy practices or the content of such web sites. If you have any questions about this privacy statement, the practices of this site, or your dealings with this Web site, please contact us.