About the JGDC
The Jewish Genetic Disease Consortium (JGDC) increases awareness about Jewish genetic diseases and encourages timely and appropriate carrier screening for all persons who have any Jewish ancestry, as well as couples of mixed heritage. The JGDC is an alliance of non-profit organizations sharing the common goal of combating genetic diseases. While each JGDC member organization has its own individual mission, the JGDC unites these organizations to jointly strengthen public education and awareness about appropriate carrier screening.
Through “JGDC In Your Community”, the JGDC offers a three-pronged approach to educate communities about carrier screening for genetic diseases. Through its “Medical Grand Rounds Program”, “Couples Aware Program”, and “Community Program”, the JGDC educates physicians, rabbis, and the lay community about Jewish genetic diseases. The shared goal of these JGDC programs is to decrease the incidence of Jewish genetic diseases and assure healthy families by increasing preconception carrier screening rates and promoting the understanding of reproductive options available to carrier couples.
Please click here to learn more about “JGDC In Your Community.” If you are interested in bringing these programs to your community, please contact the JGDC by email at info@JewishGeneticDiseases.org or phone at 855-642-6900.
Orren Alperstein – Canavan Foundation
Marion Yanovsky – National Tay-Sachs & Allied Diseases Association
Paula Greenberg Kutner – ML4 Foundation
Melissa Chaikof – Usher 1F Collaborative
Richard Gladstein – Bloom Syndrome Foundation
Kevin Romer – Mathew Forbes Romer Foundation
Elisa Ross – Genetic Disease Foundation
Ann Slaw – Familial Dysautonomia NOW Foundation
Honorary Board Member
Lois Neufeld – JGDC Founder
Judith Wilner, MD – Chair
Debra-Lynn Day-Salvatore, MD, PhD
Randi Zinberg, MS, CGC
Rabbi Peter E. Kasdan
John Barranger, MD – Medical Advisor
Frances Berkwits, MS, LMSW – Genetic Counselor
Randi Yudenfriend Glaser – Board Chair
Stan Michelman – JGDC Founder and Board Chair
David L. Rimoin, MD, PhD – Medical Advisor
Lawrence R. Shapiro, MD – Medical Advisor