About the JGDC
The Jewish Genetic Disease Consortium (JGDC) increases awareness about genetic diseases and encourages timely and appropriate carrier screening for all individuals planning to start or add to their family. Founded in 2005, the JGDC is an alliance of non-profit organizations sharing the common goal of combating genetic diseases. While each JGDC member organization has its own individual mission, the JGDC unites these organizations to jointly strengthen public education and awareness about appropriate carrier screening. Initially, the JGDC focused its efforts on the Jewish community, where screening for many diseases was recommended. However, since genetic science rapidly evolved and screening recommendations changed, the JGDC is now committed to educating everyone about carrier screening for genetic diseases.
Through “JGDC In Your Community”, the JGDC offers a three-pronged approach to educate communities about carrier screening for genetic diseases. Through its “Medical Grand Rounds Program”, “Couples Aware Program”, and “Community Program”, the JGDC educates physicians, clergy, and the lay community about genetic diseases. The shared goal of these JGDC programs is to decrease the incidence of genetic diseases and assure healthy families by increasing preconception carrier screening rates and promoting the understanding of reproductive options available to carrier couples.
Please click here to learn more about “JGDC In Your Community.” If you are interested in bringing these programs to your community, please contact the JGDC by email at info@JewishGeneticDiseases.org or phone at 855-642-6900.
Board of Directors
Orren Alperstein – Canavan Foundation
Marion Yanovsky – National Tay-Sachs & Allied Diseases Association
Paula Greenberg Kutner
Board Members at Large
Melissa Chaikof – Usher 1F Collaborative
Geoffrey Gee – Neuromuscular Disease Foundation
Kevin Romer – Mathew Forbes Romer Foundation
Elisa Ross – Genetic Disease Foundation
Ann Slaw – Familial Dysautonomia NOW Foundation
Judith Wilner, MD – Chair
Debra-Lynn Day-Salvatore, MD, PhD
Randi Zinberg, MS, CGC
Rabbi Peter E. Kasdan
John Barranger, MD – Medical Advisor
Frances Berkwits, MS, LMSW – Genetic Counselor
Randi Yudenfriend Glaser – Board Chair
Stanley Michelman – JGDC Founder and Board Chair
Lois Neufeld – JGDC Founder and Board Chair
David L. Rimoin, MD, PhD – Medical Advisor
Lawrence R. Shapiro, MD – Medical Advisor
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The Jewish Genetic Disease Consortium gathers information about users: data that users provide through optional, voluntary submission; and aggregated tracking information derived mainly by tallying page views throughout our site. Such information better enables us to tailor our content to readers’ needs.
JGDC uses information voluntarily given by you in the manner explicitly stated at the point where that data is collected. We use this information to fulfill requests that you have made to us, in order to serve your stated needs and interests. JGDC never shares information or mailing lists with any other organization or business of any kind.
We use tracking information to determine which areas of our site users visit. We do not track what individual users read, but rather how well each page performs overall. This helps us continue to build a better service for you.
In terms of aggregated tracking information, JGDC gathers information in the following way: Usage Tracking: JGDC tracks user traffic patterns throughout the site. However, we do not correlate this information with data about individual users. JGDC does break down overall usage statistics by domain name, browser type, and MIME type, by reading this information from the browser string (information contained in every user’s browser).
JGDC creates aggregate reports on user demographics and traffic patterns for prospective sponsors and advertisers.
This site contains links to other sites. JGDC is not responsible for the privacy practices or the content of such web sites. If you have any questions about this privacy statement, the practices of this site, or your dealings with this Web site, please contact us.